Happy Birthday Brinley

Yesterday was Brinley's 6th Birthday. Brinley loves Wizard of Oz, just like her mommy. Brinley is such a great big sister to Porter. He knows when she is around and loves hearing her voice. Brinley is always able to make Porter smile and laugh. Except of course when he is in a scarecrow costume with tons of people trying to make him smile. We are so blessed to have Brinley in our family and love her so much!

Don't you just love those cupcakes and party favors!

A happy Scarecrow!

Thank you all who have donated to Porter's fundraiser. Please help spread the word if you can!

Happy Friday Everyone!

-Auntie Em (aka- Aunt Sar)

Fundraiser For Porter

Dear Family and Friends,

 

We are pleased to announce a fundraiser event for Porter Schow, son of Thomas and Abby Tullis Schow,  and grandson of Craig & Susan Schow and Rich & Cindy Tullis.

 

Within minutes after birth on 8 June 2012, Porter,was struck with seizure-like activity that resulted in hospitalization at Primary Children’s for 6 weeks. 
After numerous tests - including MRI, spinal puncture, EEG and blood- it was determined that Porter had suffered from brain hypoxia at some point in-utero.
His official diagnosis is HIE (Hypoxic, Ischemic, Encephalopathy), which basically means that deep areas inside his brain are irreversibly damaged. Consequently, Porter will live his life with Spastic Quad Cerebral Palsy and other neuro-transmitter disorders that medical people are trying to diagnose.

 

Because of Porter’s disability, many therapies and treatments are available to him.  However, insurance pays very little, and with the expense of his specialized medication, family funds for personalized medical treatment, Physical/Occupational Therapy are limited.  In order to help Porter reach his full potential - and to ease the financial/physical burden of his care - additional monetary help would be greatly appreciated to off-set expenses for the following much needed items:  back pack carriers, chairs, medicine, walkers, car seats, bath seat/slings, lifting devices,/supports,  glasses etc. In the next few years, Porter will have to have a custom made wheelchair with a price tag of $25,000.

           

 We have teamed with Children and the Earth Inc. who have “adopted” Porter.  They take care of organization, event planning and return 95% of everything contributed back to Porter. They are an experienced foundation, whose mission is to help people to care for each other. If you would like to know more about the organization, click http://www.childrenandtheearth.com/

Here are a few options on how to donate for Porter:

Option 1-

1.       Go directly to https://events.regtix.com/childrenandtheearth.htm?start=over

2.       Select which event you want to participate in. (you do not have to ride/walk/or even be in attendance to donate).

3.       Select the number of people you are paying for (yourself, spouse, children, friends)

4.       Register your name, phone number, email.

5.       Under school name/Team name, look for TEAM PORTER

6.       Click Save and Continue

7.        Lastly, enter payment information and press SUBMIT MY ORDER.

 

Option 2- (If you are not riding/walking in the 5K and/or wanting to donate more than $25)

1.       Go directly to Children of the Earth homepage- http://www.childrenandtheearth.com/

2.       On the top right page, click on the big yellow MAKE A DONATION

3.       Enter in the amount you wish to donate.

4.       Enter payment information

5.       Press Review Donation and Continue

6.       MOST IMPORTANTLY- it will ask you if there are special instructions for the seller. MAKE SURE TO PUT “DONATION FOR TEAM PORTER”

7.       Submit order

 

Option 3-

If you feel more comfortable, write a check out to CHILDREN AND THE EARTH and send to: Cindy Tullis 2709 North 550 West, Pleasant Grove Utah 84062. Cindy is more than happy to register for you and send your donation in. Another option is to totally by-pass the foundation route and donate directly to Porter Schow Donation Account at UCCU by calling 801-223-8188.

 

If you know of a business, or other entity, that would be willing to be a sponsor, please see attached power point for more info.  We have one business that is considering a $5000 (tax deductible) contribution, and we would love to have more!

Thank you for your consideration!!